MN Registry: About this registry

The Membranous Nephropathy Registry is an international, collaborative database for the registration of patients with membranous nephropathy.

The aim of this registry is to prospectively collect data of deeply phenotyped patients with this rare kidney disease and to collect biobank specimen of these patients in a uniform way.

Although the data in the registry remain private to the center that included them, the uniform way of collecting data and samples will facilitate collaboration between centers and will ameliorate research in this area.

In 2014 the registry started with 3 centers in 3 different countries. However, we aim to include as much patient data as possible. Centers throughout Europe who would like to join the registry are welcome to contact the administrators for more information ( see Contact form in  the left column).

 

The MN Registry has been initiated by the Workpackage Membranous Nephropathy of the EURenOmics consortium, the European Community's Seventh Framework Programme under grant agreement no 2012-305608 "European Consortium for High-Throughput Research in Rare Kidney Diseases". 

 

 

 


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